Monday, August 10, 2009

We had a fairly quiet day. When we went for the chemo bag to be replaced we told the nurse about Tanner's problems in the morning with his heart pounding really quickly and how he gets light headed. They said it was the Thalomid that he takes right before bed that causes his blood pressure drop low and makes his heart pump really fast. After the first thirty minutes to an hour after he first starts getting up and around, he seems to do a little better.

His energy level was much lower today. He didn't even have energy to play his X-box 360 for very long - and we used the wheelchair to get him into the bedroom tonight. We have the chair ready by the bed in the morning since our experience with the last two mornings is that he's really light headed and dizzy when he first gets up.

They are taking off the chemotherapy bag tomorrow and are supposed to start the growth therapy shots on Wednesday. Supposedly these shots will make his bones ache and will make him feel like he has the flu.

I told Tanner according to his schedule, he is supposed to go every day for the next week at 8:00 a.m. for labwork and a shot and then has to go back at 4:00 p.m. for the growth therapy shot. The problem with that is when you go to the hospital you are going to be waiting an hour to an hour and a half each time. He said he's going to ask them in the morning why everything can't be done all at one time. I told him I'm sure they have a reason for splitting up the labwork and blood thinner shot from the growth hormone shot. They must have a reason why it can't all be done at one time.

Tanner got a goody box from his Aunt Traci, Uncle Rick, Sam, and Eli today and received the Lance Armstrong book, some homemade cookies, Livestrong bracelets, bandannas, and pictures that Eli and Sam colored for him. We are wearing our bracelets and have the pictures proudly displayed on the refrigerator. Thank you all!

Tanner's dad and step mom are coming down Wednesday. His dad, Tim, has gone into business with his brother and it's mandatory for him to be there as much as possible to help with the jobs as they come available. When they arrive on Wednesday, I'm planning on running back to Fort Worth for a few days and go into the office - and also put my car in the shop so I can get the air conditioner fixed. It's been rough on Tanner when it's hot and the air conditioner in my car freezes up and we have to turn it off. He got really sick from the heat the other day when that happened so I feel like I really need to get it fixed this weekend if possible.

His Granny Jane has been working hard getting all the insurance and grant information organized and is also coming to Little Rock this weekend.

He's excited to get the chemo bag off for a while. Now we just have to see how the growth therapy is going to make him feel...


  1. We can't wait to see you guys in in the morning. We love you both, Janet

  2. Hugs and kisses from us. Our Daily Prayer is "God will guide you through the rapids of change."

    Granny Jane and Pop Jerry