I tell you, taking ten steroid pills in the morning sure makes Tanner feel bad. He seems almost agressive. Everything gets on his nerves -the other drivers, people talking to him, just about everything for about half of the day.
He really works to try and control it. By the time we left the hospital today, he was telling me how much he hates taking "Dex" (the steroids) and you could see the blood vessel in his temple just throbbing. It makes his heart beat really strong in his chest and he doesn't like the feeling at all.
We got back to the apartment and he layed down on the couch and slept for about three hours. I finally had to wake him up so that he could take his lunch time pills. He hates all the pills and I have to continually remind him that they are helping him become well. The one he hates the worst is the one that dissolves in his mouth that helps prevent thrush. I told him that he really doesn't want to have thrush on top of everything else.
After I woke him up, he wanted a baked potato followed by a bowl of vegetable soup. I went to the drug store just a while ago to buy a thermometer and I picked up some vanilla ice cream and root beer so he can have a float here in a while.
His favorite thing lately has been his IPOD. He seems to have those ear phones on his head night and day. When I went in this morning to get him up, the earphones were still on his head and that's how he goes through his daily chemo treatments. Maybe he just wants to tune his mom - and the nurses - out for a while!!
His face is really flushed and red but he actually seems to feel a little better now that he's been up for a while. We are scheduled to go back to the hospital for Tanner's chemo treatments at 8:00 a.m. through the weekend so it will be just like during the week. No break for Tanner or his mom!
Hi, Tanner and Angie---Just stay with it youall, better days are ahead. This is so hard on you, seems endless. It has to be difficult facing each day this way and our hearts go out to you. I feel you are getting ahead of this illness even though it is tough right now. You will be turning the corner soon and you can start the healing process. You have so many willing to take one of your treatments---wish that were possible. Just remember everyone is by you in spirit. Love is coming your way continuously. Much Love--Aunt Judy and Big Granny
ReplyDeleteTannerboy, my heart hurts for you. It just makes me so sad to see you having to go through all of this. I can only imagine what you must feel at this time of your young life. My salvation is my faith that God is making you well again and very soon all of this will be far behind you. This time next week it will all be done with the chemo and transplant. There are so many people out here who are praying for you and are thinking of you every day. There are so many that feel your pain and really care about you. We love you and miss you very much. Will see you real soon and we can plan our trip to the coast. Granny and Pop
ReplyDeleteDear Angie,
ReplyDeleteMy name is Jean and I’m with the National Bone Marrow Transplant Link. Our organization helps patients, caregivers, and families cope with the social and emotional challenges of transplant by providing vital information and personalized support services. We subscribe to Google blog alerts, where we found Tanner's story.
Please know that others are thinking of him and pulling for him! I'd like to send you a copy of our award-winning "Caregivers' Guide for Bone Marrow/Stem Cell Transplant" if you send me your mailing address (jeanjones@nbmtlink.org).
To learn more about our programs and services,including peer support for patients and their caregivers, please visit www.nbmtlink.org or call 800-546-5268.
All the best!